No recall of pain
13:58 Tuesday 4 Dec 07
J’s avonex (that’s the interferon) arrives in a refridgerated van, packed in a box, in a bag, in polystyrene, in another box. Cool is important :) It also comes with a bag with a sharps bin, travel information, lots of literature and more. No expense spared.
Part of the reason she came off it was that the day following the injection she was wasted. Moving was almost impossible, she hurt, her ability to concentrate was shot. Sundays meant full-on care and all in all not good by a long way. She dreaded Sundays and would even contemplate not having the jab. She said that by Friday she was okay and that it took the week to get over the injection. We all certainly remember what it was like and it is with quite some relief that the effect is not happening this time around. There is a slightly different effect though – it takes all the strength out of her body for the night. This is not a good thing when you need to get up. Luckily I’m here :) Thing is, she is debating asking to stop the interferon again because of this but she cannot recall what it was like previously.
I’m telling her just how bad she was and that this time it’s not bad at all, but because she doesn’t remember she cannot compare the two experiences. The body does not accurately recall pain and bad physical events presumably for your own protection but this wasn’t in that league. It’s really odd that she just doesn’t remember an event that occurred weekly for several months and that lead directly to the interferon stopping last time. And this is bad because it might lead her to not wanting it again. Something neither of us want given we have established she is still in relapsing-remitting though with a lot of residual damage.
It’s very odd.
