The MS tightens it’s grip
00:58 Friday 6 Apr 07
J was told by the MS Consultant today that she has now moved to the Secondary Progressive stage. It’s not a good stage. Unless there is a plateau which in unlikely, the damage just gets steadily worse. A second MRI scan showed that some of the original lesions have gone – they have been replaced by many others though.
This diagnosis changes nothing – after all the symptoms were there last week/month but I still find it strange that there was marked deterioration when the Consultant stopped the interferon-b. He will not put her back on it.
Things have taken a downward turn here because the impact on all is us is growing but there’s not a whole lot can be done. Apparently the Consultant talked about trials but there is no point when she can’t get on a trial, they are all still in double-blind or in another county. It does not help her. If anything it’s cruel to dangle those like that.
J feels she will be in a wheelchair full-time by year end. Seeing how she moves now I have not the slightest doubt that she will be correct. This is no self-fulfilling prophecy, it’s no giving up. It’s quite simply that the body can’t move like it should. Bit of a bastard is that.
There’s nothing anyone can do or say, but blogs are about diary type things too – and this is a notable event even though all the reasons are wrong.
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I am saddened to hear this news but so glad that J has you and the girls – a loving and supportive family.
I have had to adjust to many limitations and to living with pain as well. It has been a very difficult transition for, just a short time ago, I led a very physical outdoor life. However, in the past year I have come to recognize that life is about so much more than the mobility and agility that we erroneously think defines us.
When I came to that point I wrote this below and VOILA! I also found my handle.
We’re all time thieves. We squirrel away into the corners of our hearts, special people, places and experiences that we borrow from this life; the life we borrow from the source of all love and all life. And, when the long cold winters come, these “nuts” are our sustenance.
May you and your family squirrel many “nuts” to sustain you.
Namaste,
TT
23:06 Friday 6 Apr 07
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I read aloud to Julia this powerful post. I can’t find the words… Julia and my thoughts are with you.
01:32 Saturday 7 Apr 07